New NINDS NOSIs for Hydrocephalus Research Published!

We wanted to make you aware of two new Notices of Special Interest recently published by NINDS for hydrocephalus research with some changes from the previous Program Announcement. Both opportunities now allow for mechanistic clinical trials.

This is exciting news for hydrocephalus research! Good luck to all on grant submissions!

HA’s National Conference on Hydrocephalus (HA Connect 2022) will take place in Austin, TX, from July 14th-16th. We believe our Texas venue can be our largest yet, so please help us get the word out!

Reminder: We welcome researchers to attend.

Topic highlights:

  • The PI kickoff for the AHCRN Placebo-Controlled Effectiveness in INPH Shunting (PENS) Trial and an NPH patient-PI town hall.
  • 12 scientific research sessions – please see this flyer for information.
  • We are excited to have NASA panelists this year speaking about studying Hydrocephalus and ICP in space, and what can be gleaned from these studies!
  • We also will have a poster session showcasing the work of 10 young investigators who are joining the hydrocephalus research community.

Find more programmatic information and register here!

Medical professional HANDS members, please spread the word about this conference to your colleagues and patients.

We have drafted an editable letter in both English and Spanish that we are asking you to send to your patients via mail or email to let them know about the conference. The letter can be found here. We also have an Outreach Toolkit with social media graphics and a downloadable flyer that can be hung or distributed. Finally, we have conference postcards that can be placed in clinics for patients – if you would like a package of these please email me (

If you could kindly also forward this post and the patient outreach letter to everyone who interfaces with patients in your practice so they can also help us reach the community, that would be immensely appreciated.

Job Opening: HA National Director of Research

National Director, Research

Full-time, Remote Position (U.S.)



The Hydrocephalus Association (HA) is seeking a National Director of Research who will lead a fast paced, broad spectrum research department, and emerging research program focused on the various etiologies and diverse needs related to hydrocephalus care and treatment. HA’s research program spans basic, translational and clinical research, and our strategy has resulted in significant results with $13M invested in the program since its founding in 2009, and funded scientists and clinical networks going on to secure federal grants resulting in a return on investment of more than $50M. The National Director of Research will collaborate with a range of stakeholders to execute a research strategy driving the program to fulfill HA’s strategic vision and goals. The National Director of Research reports to the President and CEO.

Hydrocephalus Association


The Hydrocephalus Association is a national not-for-profit organization dedicated to eliminating the challenges of hydrocephalus by promoting and funding research, and through comprehensive support, education and advocacy programs supporting patients and families who are affected by this condition. Founded in 1983 by parents, HA today is the nation’s largest and most respected organization dedicated to hydrocephalus. HA has been instrumental in creating a community of individuals, families, health care professionals and scientists addressing the complexities of hydrocephalus in all age groups. HA is headquartered in Bethesda, Maryland.

The Hydrocephalus Association’s mission is to find a cure for hydrocephalus and to improve the lives of those impacted by this condition. The Association seeks to accomplish its mission by collaborating with patients, families, caregivers, researchers and industry, raising awareness and funding innovative, high-impact research to prevent, treat and ultimately cure hydrocephalus. HA’s vision is a future without hydrocephalus.

The Hydrocephalus Association offers a very competitive salary and comprehensive benefits package which includes medical, dental, and life insurance coverage, a 403(b) plan, paid vacation, and more!

The full job description can be found here. Qualified candidates should submit a resume or curriculum vitae with a cover letter via email to by February 28, 2022. Email subject must contain the words, “National Director, Research.”

2022 Clinical Scientist Development Award: Doris Duke Charitable Foundation Announcement

The Doris Duke Charitable Foundation
2022 Clinical Scientist Development Award competition is now open

Pre-proposal applications are being sought from Assistant Professor physician scientists conducting clinical research in any disease area. Click here to find out more about the eligibility criteria and how to prepare an application.

The Doris Duke Charitable Foundation recognizes that a diverse workforce that represents the demographics of the population of the United States is better poised to address health issues affecting all communities. DDCF strongly encourages individuals from groups underrepresented in biomedical research to apply because DDCF is committed to the retention and advancement of early-career physician scientists who are conducting seminal clinical research and who belong to populations whose exclusion from research based on their race, ethnicity, gender, disability, sexual orientation, or socioeconomic background has resulted in underrepresentation in the workforce.

Application Deadlines
Eligibility exemption requests due: October 15, 2021, 5pm ET
Pre-proposal applications due: November 12, 2021, 3 pm ET
Invitation to submit full proposal: By 5 pm ET on January 14, 2022
Full proposals due: March 11, 2022, 3 pm ET
Award start date: July 1, 2022

The Clinical Scientist Development Award does not require institutional nomination. This competition employs a two-stage process. Pre-proposal applications will be reviewed and approximately 50 applicants will be invited to submit a full proposal.

In keeping with the wishes expressed in Doris Duke’s will, experiments that use animals or tissues derived from animals, including cell lines, will not be supported by this program.

Brain Barrier Virtual Meeting

The seventh Cold Spring Harbor conference on Brain Barriers is going virtual and will begin with a late morning session on Wednesday, April 7 and conclude late afternoon on Friday, April 9, 2021.

The purpose of this Cold Spring Harbor meeting is to explore and encourage new conceptual approaches and to apply novel methods to the neuroprotective physiologies of BBB structures. Our goal is pair genetic model organism biological methods with recent insights in vertebrate BBB physiology and development. We hope to create cross fertilization between fields that rarely see each other and get people thinking about how model systems can help parse the regulatory networks necessary for parsimonious BBB function.

The conference is intended to foster cross-disciplinary exchange of ideas and expertise between developmental and evolutionary biologists, vascular and BBB physiologists and disease oriented industry scientists interested in modifying or circumventing specific pathways of neuroprotection. While a number of speakers have been invited, please note that the majority of oral presentations will be drawn from openly submitted abstracts. The abstract deadline is January 29, 2021.

Dritan Agalliu, Columbia University
Maria Lehtinen, Boston Children’s Hospital
Benoit Vanhollebeke, Universite Libre de Bruxelles, Belgium

Emerging Concepts and Hot Topics in CNS Barriers
Imaging Approaches to Study CNS Barriers
Development, Plasticity and Specialization of CNS Barriers
Systems, Computational and Cell Biology of the CNS Barriers
Neuroimmune Interactions Across CNS Barriers
CNS Barriers in Aging, Senescence and Neurodegeneration

Panel Discussion: “The brilliance barrier Stereotypes about brilliance are an obstacle to diversity in science and beyond”.

Workshop: “How to frame and write constructive, fair peer-review”

For more information, visit the Brain Barriers meeting website.

Hydrocephalus Society Global Webinar Series on iNPH

The Hydrocephalus Society Board of Directors has developed a virtual scientific and educational programme, consisting of six free of charge webinars, dealing with idiopathic Normal Pressure Hydrocephalus (iNPH) to provide hydrocephalus-related training opportunities.

Part 1 of the Global Webinar Series begins on November 20, 2020!

For our first topic “Clinical work-up” we are pleased to announce 3 distinguished speakers:

  • When should we suspect iNPH? (Intro, epidemiology) by Mark Hamilton
  • Which are the typical clinical symptoms? The clinical syndrome of iNPH: gait & balance, cognition, urinary by Giorgio Palandri
  • The typical radiological picture. CT, MR by Karin Kockum

We hope to see you all there and stay tuned for all our upcoming and exciting webinars!

Download the programme outline for the Global Webinar Series here!

Register for Part 1 to here!